Tuesday, August 2, 2011

Friday Book Nook #2

OK - so it isn't Friday yet! But you will need time to get ready for this week's book recommendation. It's one of those can't-put-it-down ones that will leave you feeling ready for battle for anything!

The Cure:
How a Father Raised $100 Million--and Bucked the Medical Establishment--in a Quest to Save His Children.

This book was made into a movie starring Harrison Ford called "Extraordinary Measures."

The author of this book is an extraordinary man and father. If we could all just fight a fraction of the battle he waged, we would really get somewhere.

John Crowley is a role model for me. I strive to take on my nook of the world with the same relentless spirit as he does for his children. We all have it in us to push the boundaries and make change.

I had the pleasure of spending some time with John discussing his journey and giving him a glimpse into the Rett Syndrome world. He continues to fight for ALL rare disorders and I hope our paths will cross again!