Thursday, October 20, 2011

Ava's Match

We have such a wonderful story to share!

In the words of one of our new Board Members, Pam Maxwell:

Shortly after joining the Girl Power 2 Cure Board of Directors, I was scheduled to attend our first evening board meeting in August. This was being done via conference call and, as a working Mom, my kids are very used to me taking calls and working at home. But having a “work” call at night is unusual so they were asking me why I was working at night.

As we drove home that evening from dinner, we had a conversation about my joining this board, what Rett Syndrome is and what the non-profit organization and those who join the board do to help. We got home just before 8:30 pm and I went right into the office, instructing my 6-year-old daughter, Ava, and 8-year-old son, Alex to go play and give Mommy some quiet time.

I dialed into the conference call and was waiting for the others to join, when...

Ava came into the office with her piggybank and proceeded to dump its entire contents onto the floor, asking me for a plastic bag into which she could put all the change.

She said, “Mama, I want you to give this to those people who help the girls.”

I explained she didn’t have to give all her money but she said, “It’s not fair that they can’t talk and play.” I gave her a big hug and said of course, that I would take it with me when I went to Washington DC for the big gala party.

At the board meeting in DC, we dumped the money onto the table and counted it out. Our board consultant was so excited about Ava’s giving nature that she wrote a little note to Ava thanking her for her generosity and said she would match Ava’s contribution. Then I said I would also match it as did Laura Labatte, GP2C board treasurer. Laura counted out the money – $6.65 all in change.

With all the “matching” donations (most were for more) we raised $143.65 for Girl Power 2 Cure in a matter of minutes. All that from a simple act of kindness by a 6-year old who just wanted to help.

Will you match Ava's $6.65?

Tuesday, October 11, 2011

October is Rett Syndrome Awareness Month

What an amazing month of awareness! People are painting their toenails purple, putting purple lightbulbs in their front porch lights, AND painting the windows on their vans -- just to name a few!

There are TV spots, Radio ads, and newspaper articles. Rett Families are shouting from the rooftops.

I want to share one of the radio spots with you. It is the voice of Dana Marie, a Canadian recording artist. She wrote a song, I'll Fly, for a little girl, Anna, that she knows with Rett Syndrome. A brief story about the song recently aired on 94.2 Faith FM.

Love what you hear and want to get the song? We have it available for download and half the proceeds benefit Girl Power 2 Cure.