Wednesday, October 30, 2013

Welcome Aboard! Announcing our three newest team members!

We are excited to announce the addition of three amazing Rett moms to our Mothers' Advisory Board! What is the MAB? It is a group of dedicated mothers who have daughters with Rett Syndrome who volunteer to help GP2C in many ways.

First and foremost, they serve as mentors to Rett families who have reached out to Girl Power 2 Cure for support and camaraderie. They help us spread awareness for GP2C and Rett Syndrome. They host really fun events! And, they serve as a sounding board for everything going on here at GP2C.

Let's meet these ladies! (Click here to meet the rest of our team when you are done!)


Tanis Anderson

"When Melia was diagnosed in August 2011 I was heart broken, but it wasn't too long after that I found Girl Power 2 Cure and realized there was this whole group of amazing people who wanted to help and support me in any way they could. The next summer I met Kelly and Ingrid and fell more in love with the organization and knew it was something I wanted to be a part of. So in February 2012 I ran with them in the Disney Princess Half Marathon and plan to run until Rett Syndrome is cured, and then I hope Melia will run it with me."
I feel honoured to be a part of the Mother's Advisory Board so that I might be able to help and support others like I have been these last few years!

visit Melia's page


Niki Tebbe

"Quinn was diagnosed with Rett Syndrome in May of 2005. Our world was turned upside down.  As our family was adjusting to the struggles and challenges of life with Rett Syndrome, I met Ingrid Harding. We had many conversations about the organization she was developing to help the families and girls with Rett Syndrome.  I was in awe of her vision and goals for Girl Power 2 Cure.  You could say I have been with Ingrid since “the beginning." She has  formed an amazing organization that is mainstreaming awareness of Rett Syndrome, and offers ALL of us a place to turn for strength, advice and support.

I truly believe that our family was chosen to be a part of this incredible journey to find a cure for Rett Syndrome.  We are so proud to be Quinn’s parents. She is our inspiration every day.  Her patience, and love for life gets us through the toughest of days.  

I am honored to be a part of the Mothers' Advisory Board  and am looking forward to meeting and helping other families on this journey."

Niki  has been a Registered Nurse in the Emergency Room for 20 years. She lives in Illinois with her husband Cliff and their children: Quinn, (10 RS), Ryker  (10), and Spencer (9).


Ronda Trester

"At the time of Courtney's diagnosis we were simply heart broken, scared, helpless, and lost beyond what words can describe.  Every doctor we went to never heard of Rett Syndrome and the specialists that were familiar with Rett Syndrome wanted to prepare us for the worst.  Our daughters future flashed before our eyes.  When it's your daughter, when it's your child, you will move Heaven and Earth to search for answers and to fix what is broken. 

We are blessed to be surrounded by some amazing friends and family that have stood by our side through the good times and the bad.  A couple of years after diagnosis we attended a golf tournament in our area for Rett Syndrome.  The event represented Girl Power 2 Cure and there we met a remarkable family, The Brooks.  We knew at that point we were meant to be with this organization.  A non-profit that is filled with hope, dedication, support, and loving caring individuals.  Spreading awareness and raising funds for continued research is key. It has been proven Rett is reversible! 
I am excited and honored to be part of such an inspirational group.  I am looking forward to meeting and helping other families through this Rett journey.  To empower the hope, embrace the possibilities and turn our dreams into realities. Together if we believe we can achieve!"
Ronda has been employed for over 10 years at financial institution. She resides in Little Elm, TX with her husband, Wally Trester, who also volunteers on the Board of Directors; and their two children Deven (15) and Courtney (8 RS).