Wednesday, October 1, 2008

October List

It's October, folks! And that means Rett Syndrome Awareness Month. Let's make it more than “awareness” and take some action.

Don't know where to start? Here is your Rett family "to do" list for October. Not a Rett family? You can still help with #3 and #4!


1. Sign up for the Rett Syndrome Research Trust (RSRT) newsletter. The "register" link is in the "Families" section at

2. Join Girl Power 2 Cure with a Family Membership -- it is just $5/mo and you get cards with your daughter's photo plus a web page for accepting donations in her honor, plus more!

3. Get your school (and other local schools) to host a Dress Up 2 Cure Day on April 1st.

You have to approach them ASAP to get it on the calendar... see if a group at school or a girl scout troop will take it on as a service project. All the info, plus a step-by-step school guide is at:
* if anyone is looking for a part-time job, you can get paid to do this!

4. Get at least 10 people (including yourself) to Sponsor a Drug in your daughter's name ASAP --

RSRT has an incredible opportunity for families to make a direct impact on this crucial research project to test 3,000 FDA-approved drugs/compounds on the Rett mice. Imagine there might be an FDA-approved drug sitting on the shelf right now that could help our girls!

*** 3,000 donations of $168 each will fund this project in its entirety - let’s get it done.

5. Forward this list to all of your Rett family contacts --- and then get started!

Thank you for doing your part in finding a cure for our girls,

Ingrid Harding
President and Founder

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